Sorry for not posting for awhile but, Colin had a rough weekend. He didn't sleep at all and everyone was very cranky. After a few days of being off the Methadone/Ativan and adding Pedialyte to Colin's feeds he is a very happy baby!! The happiest we have seen him in a very long time. We increased his feeding rate a lot this week and he's holding steady. Tim and I study his belly, feet and eyelids for water retention. If we knew how to check for an enlarged liver we would but, Dr. K hasn't taught us!! He won't even if we ask him because he knows we would be poking Colin's abdomen every 5 minutes!! He also told us not to weigh Colin daily but, we still do!!
His therapies have all started up again and Colin is doing great. Last fall I would listen to him scream and cry during every session and now he smiles and plays and I don't hear any cries from him. One of Colin's therapists told me that this week was the first time she had ever seen Colin smile and it made her want to cry. Colin even ate some of a french fry during his speech therapy. Tim and I are praying and hoping that Colin has turned the corner. We are off to Connecticut this weekend. We'll post some pictures when we get back.
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Colin Charles
About Me
- Colin's Blog
- I was born with Tetralogy of Fallot-Pulmonary Atresia, Ventricular Septal Defect and MAPCA's. Translation: I was born without a pulmonary artery and instead have tiny collateral arteries that have been brought together with a valve and I had a hole between my two ventricles. I have undergone 3 open heart surgeries and 7 cardiac catheterizations!! I spent 122 days in the hospital since last April. My most recent hospitalization was at Childrens in Boston where I spent 6 weeks. I'm finally home with my mommy and daddy and hoping to stay there!! Now I just need to grow so my heart can get stronger! My favorite thing to do is watch The Wiggles.
7 comments:
Have fun this weekend!!!
That's awesome that Colin is perking up!! Must be something in the air this week...i LOVE IT!!!
French fry..i'll have to try that one with Isaac...he's just hooked on his cheese puffs!
Can't wait to see the new pics next week! (don't wait too long!)
Kathy
Yay for eating a bit of french fry - noting better to start with! Sorry that you all had a rough weekend, but glad that things have turned the corner!
Hope you all have fun this weekend & hurry up with those pics! I wanna see that smiling face!
Tina:0)
I know it is SO EASY to obsess about little things, but try not to. As our wonderful cardiologist tells us...THEY (the docs) are the ones who should be worrying about the little things. You look to THEM. If there's something you should be worried about, they will tell you!
I'm so glad you're getting a weekend away. Have a wonderful time! And good job on the french fry, Colin! Woohooo!
Have a great trip! Enjoy yourselves. Looking forward to more pictures and more good news when you get back.
That is great he ate a bit of a french fry. I get so excited when Arianna eats just a few bites of food. I'm thinking of you all.
Vanesa
Hope you have fun in Connecticut. I'm sure Colin will have everyone smiling. Wish we could be there to visit with you and give Colin big hugs and kisses. Love, Auntie Sue
Just popping in again to wish you a Happy Mother's Day!
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