(photos taken this morning....)
Thursday, March 20, 2008
Rollercoaster......
Well Colin had his Cath yesterday to put the hole between the Right and Left Atrium's. After the Cath, it appeared that it may have not of helped so we were down and out again last night....Then this morning, for some reason during his examination, Colin's liver was half the size it was two days ago and they are not sure why. He is eating through his tube and they stopped the Milrinone last night to see what would happen. So maybe the hole has made a difference? Last night we discussed potential for Heart/Lung transplant with Dr. Bacha, and mentioned that we weren't there yet, but he would talk it over with the transplant team. We are hoping that we don't have to go that far.........
(photos taken this morning....)
(photos taken this morning....)
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13 comments:
What a rollercoaster ride you guys have been on! I'm so sorry that you have to deal with the ups and downs. But it looks like maybe the cath did some good after all, which is GREAT news! We will pray that things continue to look up for your ADORABLE little guy.
He's such a trooper! He just has this look on his face like, Yep! I'm tough! I can handle it! :)
Praying for you all...
Children never cease to amaze us! Keep on doing what you do best...loving and supporting Colin. And know that all of us the blog are doing the same for you! Love, Sue
Oh what a difference from last night when we left you. Hope this is a healing and turning point for the better for Colin. He is surely a fighter. Love you all very much and will be back on Sunday. Prayers do make a difference. Keep believing.
A heart/lung transplant?????????
Oh boy...
he is just so dang sweet...
I just worry so much about you guys... I feel like it's happening to me... and I know it's not...
I pray for you everyday.
IF IF IF you need to think of transplant.. I have the name of an organization that helps to fundraise for those kind of things...
they were willing to help us when we ran out of health insurance....
I was very impressed ...
our Governor sent me their name.
I meant to say..
God bless you and your family...
this is such a tough thing...
I hope you know you can call me anytime of the day or night if you want to talk....
cry, vent... whatever...
Hugs to you all...
the whole family.
okay so if his liver stays small, what does that mean?
i'm sure hoping you don't have to go the transplant route and that this morning is colin's way of telling us that he's done with this ride ;)
i'm with terri - i just feel like you guys are family now and my heart is on edge everyday to hear how our little colin is doing....
it was so nice to hear some good news today. one day at a time, right!? thanks for the quick update! love - the mannings
Oh you poor things...this IS a rollercoaster ride. I am so happy to hear his liver is getting smaller, always a good sign. I'm beleiving the transplant is the route your headed and Colin will recover and amaze everyone. Look at him...he is such a little trooper.
Give him a hug from me!
God Bless
Lord I pray that you heal little Colins heart. You can heal this sweet little boy. We put in all in your hands. We are praying for you sweetie.
Love,
Tofaeono Family
Praying that God will bless Colin with a miracle and send angels to watch over all of you during this difficult time. Miracles do happen; don't give up the fight. Hope our prayers are giving you strength.
Love,
Jani & Jim
HI guys...I am on the edge of my seat everyday checking the site. You're right - what a rollercoaster ride you have all been on with setbacks and advancements. I have faith that this is a true turning point for Colin. I can't wait until you are home and we can get together for a playdate...that day will be here before we know it. Take care of each other. We love you...sending lots of prayers & warm hugs your way. Jeff, Suzy & Maria
I agree with what everyone said above..
you guys are part of our family now...and we have grown to love you all...especially Colin!!!
I hope the cath continues to help and the pressures are lowered.
We will keep praying for your family.
It sure is time to get off this roller coaster...tell Colin it's time to get off and just walk around the amusement park for a while!!!
Lots of love your way,
The Rollers
I sure hope and pray today will bring some more positive news and Colin will make more progress. I think ya'll have been on this rollercoater ride long enough...It's time to begin a less stressful ride!
Colin your sweet and adorable smile keeps all of us trusting that miracles do happen. Stay strong and keep on believing!!!
Love to all. xxoo Jeanne & Joe
thanks for the update! great news...now i have that song rollercoaster of love in my head!!!! fitting i think...we are always thinking and praying for you all...bholm.....the milligans
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